ALARA SMA type 1

ALARA SMA type 1 | Geld inzamelen
 
 

Dear all,

My name is Güler.

I am the mother of Alara, a baby girl of 21 months old.

Unfortunately, she suffers from SMA TYPE 1, which is a fatal muscle disease.

There is only one kind of medicine that can save her life, that is called ZOLGENSMA.

Based on the results of her last gene scans, Alara's body is 99,9% suitable for this therapy.

One restriction : the medicine is only successful if it is given below a maximum body weight.

The treatment is given by a hospital in Dubai, and has a total cost of 1.800.000 €.

Alara's survival depends on this medicine.

Now we have 4 last kilos left to be treated in Dubai.

We have very little time left for Alara to achieve higher success from treatment.

Please give us the support you can and let us collect the remaining amount in this short time.

We want to get this treatment as soon as possible before Alara's condition gets worse.

Please reach out to Alara, let's keep her alive together.
MUMUN BALLI
15-05-2021

Dear heroes of Alara,
Until now, we collected 1.530.682 € , so we reached 85% of the total amount needed.
It looks like the remaining amount will also be completed within the next days.
Since the end of the tunnel is insight, the current fundraising campaigns will be closed one by one.
And now it's the turn of our campaign at Doneeractie.
On behalf of Alara and her family, words cannot express how we can thank you all.
May God bless you for all the your support during these holy months.
By the will of God, we will send our lovely little girl Alara as soon as possible to her treatment , so that she can finally start living.
We wish you all a merry and healthy Ramazan feast.
Kind regards,
Mümün Ballı

 

MUMUN BALLI
15-05-2021

instagram link :

Alara

 

 

MUMUN BALLI
15-05-2021

Liefste helden van Alara,
Tot nu toe werd 1.530.682 € verzameld , dus we hebben reeds 85% van het totale bedrag bereikt.
Het lijkt erop dat de komende dagen het resterend bedrag ook zal vervolledigd worden.
Vermits het einde van de tunnel in zicht is, zullen de lopende inzamelacties een voor een afgesloten worden.
En nu is het de beurt aan onze campagne bij Doneeractie.
In naam van Alara en haar familie schieten woorden tekort om jullie te bedanken.
Moge God jullie allen zegenen voor al jullie steun tijdens de voorbije heilige maanden.
Met de wil van God zullen we ons lief meisje Alara zo snel mogelijk naar haar behandeling sturen, zodat ze eindelijk kan beginnen leven.
We wensen jullie een zalig Ramazan feest.
Met vriendelijke groeten,
Mümün Ballı

MUMUN BALLI
15-05-2021

Sevgili Alaranın kahramanları,
Şu ana kadar toplanan miktar 1.530.682 € , yani %85'e ulaşmış bulunmaktayız.
Günler ilerledikçe kalan eksiklerde tamamlanıcak gibi görünüyor.
Yolun sonu yaklaştığı için, kampanyalarımız teker teker kapatılıyor.
Ve sıra Doneeractie kampanyamıza geldi.
Alara ve ailesi adına sizlere ne kadar teşekkür etsek azdır.
Şu mubarek aylarda verdiğiniz destekler için Allah hepinizden razı olsun.
Inşallah Alara kızımızı en kısa zamanda tedavisine gönderip, hayatına kavuştururuz.
Ramazan bayramınız kutlu olsun.
Saygılarımla,
Mümün Ballı


 

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