HELP DANIELLE WITH HER FIGHT AGAINST DYSTONIA | Geld inzamelen
 
 

HELP DANIELLE WITH HER FIGHT AGAINST DYSTONIA

Behandeling tegen Dystonie in Zuid Korea Treatment against Dystonia in South Korea

 

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HELP DANIELLE MET HAAR STRIJD TEGEN DYSTONIE 
 
Behandeling tegen Dystonie in Zuid-Korea
 
Mijn naam is Danielle (36). Ik ben getrouwd met Federico (35) en moeder van ons zoontje Luca (3). De afgelopen twee jaar lijd ik aan Dystonie. Ik kan mijn spieren in mijn lichaam niet meer controleren. Opstaan of lopen gaat nauwelijks.
 
Wat begon met een tintelend en dof gevoel in sommige vingers in mijn linkerhand, ging al snel verder tot het niet meer kunnen gebruiken van mijn linkerarm en -schouder. Onderzoeken in het ziekenhuis kwamen op niets uit. Ik begon met fysiotherapie maar de klachten werden langzaam alleen maar erger. Lopen werd erg moeilijk omdat mijn bovenlichaam steeds meer naar rechts begon te staan. Een paar maanden later begon mijn hoofd ook sterk naar rechts en achteren te trekken. Het was onmogelijk om mijn hoofd recht te houden. Mijn hele bovenlichaam trok hard achteruit als ik alleen maar probeerde op te staan. Ik werd gek. Wat was er mis met me? Ik moest me ziek melden op mijn werk. En toen werd ik volledig afhankelijk van andere mensen om voor mijn zoontje te zorgen, voor ons te koken, om me naar het ziekenhuis te brengen. Mijn leven was kapot, ik was gevangen in mijn eigen lichaam.
 
In maart 2019 stelde een neuroloog diagnose 'Dystonie'. In Nederland wordt deze aandoening behandeld met Botoxinjecties in je spieren. Dit hielp mij een beetje om weer te kunnen zitten. Maar de Dystonie bleef te sterk en ik kon niets meer doen. Ik was kapot na drie stappen lopen. Ik lag heel de dag in bed of op de bank. Door de spierspasmes kon ik 's nachts niet slapen. Medicijnen hielpen niets. De volgende optie zou Deep Brain Surgery (DBS) zijn.
 
Ik wil mijn leven terug. Ik wil weer lopen. Ik wil weer mama en echtgenote kunnen zijn en naar buiten kunnen gaan...
 
Toen hoorden we over een Nederlandse vrouw die dankzij een behandeling in Zuid-Korea bijna volledig hersteld was van haar Dystonie. Dokter Lee Young Jun heeft ruim 30 jaar succesvol ervaring met het behandelen van mensen met Dystonie van over de hele wereld. Hij focust zich op de oorzaak van de Dystonie per person, in plaats van symptoombestrijding. Zijn 'Functional Cerebro Spinal Therapy’ (FCST) is een intense behandeling gericht op het corrigeren van de kaakgewrichten, schouders, wervelkolom en bekken. Je lichaam wordt weer recht.
 
Op 19 januari besloten Federico en ik ervoor te gaan en namen het vliegtuig naar Zuid-Korea. We hadden niets te verliezen. We ontmoetten dokter Lee die gelukkig zei dat hij me kon behandelen. We zagen alle Koreaanse en buitenlandse patiënten in zijn kliniek die herstelden. Er was weer hoop!
 
Ik ben nu begonnen met de intense revalidatietherapie van dokter Lee die bestaat uit vele behandelingen van 9.00-18.00 elke dag, zoals medische consultaties met dokter Lee voor problemen met mijn kaken (‘temporomandibular disorder’ of TMD), accupunctuur en speciale fysiotherapie. Het kost waarschijnlijk minimaal drie maanden voor mij om te herstellen. De behandeling in Zuid-Korea is de enige kans om mijn leven weer terug te krijgen.
 
Behalve vliegtickets en accommodatie in Zuid-Korea, kost één maand therapie 9.500 euro. Voor drie maanden behandeling hebben we 28.500 euro nodig. Dit hebben wij helaas niet… Daarom vragen we aan iedereen die dit leest om hulp. We zijn voor eeuwig dankbaar voor alle steun. Deel dit bericht alstublieft zoveel mogelijk. Heel erg bedankt…

 

In deze video legt dokter Lee meer uit over dystonie en zijn behandeling: https://www.youtube.com/watch?v=9NqBzpRjPZQ 

 

Dit is de website van de Lee Young Yun Clinic in Cheonan in Zuid-Korea: http://www.fcstnet.com

Volg mijn herstel ook via de Facebookpagina van dokter Lee: https://www.facebook.com/groups/cervicaldystonia
 


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HELP DANIELLE WITH HER FIGHT AGAINST DYSTONIA 
 
Treatment against Dystonia in South Korea
 
My name is Danielle (36). I am married to Federico (35) and mother of our little boy Luca (3). For the last two years, I have been suffering from Dystonia. I cannot control my muscles in my body anymore. I cannot stand up or walk.
 
What started with a tintling and numb feeling in some fingers in my left hand, went on with me not being able to use my left arm and shoulder anymore. While seeing many medical specialists and starting physical therapy, the complaints just got worse. It slowly started to become more and more difficult to walk as my upper body started pulling to the right. A few months later, my head start pulling to the right and the back strong. It was impossible to keep my head straight. My whole upper body was pulling backwards if I only tried to stand up. I was freaking out, not knowing what was wrong with me. I could not go to work anymore. And then I became totally dependent on other people to help take care of my son, cook for us, to accompany me to the hospital. My life fell apart. I was trapped in my own body.
 
Then in March 2019 a neurologist diagnosed me with Dystonia. In the Netherlands, Dystonia is treated with Botox injections in your muscles. This helped me a little bit to be able to sit up, but still I could not do anything. I was exhausted after taking three steps and ended up just lying on the bed or couch the whole day. Because of all the muscles pulling, I could not sleep at night. Different kinds of medication did not work. Another option in the Netherlands is to have a Deep Brain Surgery (DBS).
 
I want my life back. I want to walk again. I want to be a mother and wife again and be able to go outside of my house.  
 
Then I heard about a Dutch lady that recovered almost fully from Dystonia thanks to a treatment in South Korea. Doctor Lee Young Jun has 30 years of experience curing people with Dystonia from all over the world by focusing on what caused the Dystonia instead of fighting the symptoms. Doctor Lee has got a great success rate. His 'Functional Cerebro Spinal Therapy' (FCST) is an intense treatment, which focuses on correcting the jaw joints, spine and pelvis, and make your body straight again.
 
On January 19, Federico and me decided to go for it and took a plane to South Korea. We had nothing to lose. We met Doctor Lee who fortunately said he could treat me. We saw all the Korean and foreign patients in his clinic who have made remarkable recoveries. There was hope again!
 
I have now started Doctor Lee’s intense therapy that consists out of many treatments from 9.00-18.00 every day, consisting out of medical consultations with Doctor Lee for my jaw problems (temporomandibular disorder or TMD), acupuncture and special physiotherapy. It will take at least three months of therapy for me to get cured. The treatment in South Korea is unique and is my one chance on getting my life back.
 
Besides the flight tickets and accommodation in South Korea, one month of therapy alone costs 9.500 EUR. For three months, we need a total of 28.500 EUR. These total costs are impossible for us to pay… Therefore, we reach out to everyone who reads this to please help us. We are forever grateful for any of your support. Please do share this message as much as possible. Thank you so much…
 


In this video Doctor Lee explains more about dystonia and his treatment: https://www.youtube.com/watch?v=9NqBzpRjPZQ  

This is the website of the Lee Young Yun Clinic in Cheonan in South Korea: http://www.fcstnet.com

Follow my progress via Doctor Lee’s Facebook page: https://www.facebook.com/groups/cervicaldystonia
 

Danielle Andela
12-07-2020

Dear all,

It’s my last weekend in Cheonan. I’m feeling so tired after five months of treatment. I had hoped to be better by now. But, the road to recovery is never like you expect it to be, I guess. 


I can feel Im nervous to travel alone because my back and neck spasms are a bit worse again. Luckily I still have some Valium. And if I get really bad on the airport or in the plane, I’m just going to lay down on the floor..! I hope I can lay down on some empty seats. 


The picture of seeing and hugging Luca again is playing like a movie in my head, over and over again ❤️ I’m sure being with my loved ones will help my recovery as well. 


Danielle Andela
08-07-2020

Dear all, only one more week and I'm flying back to Europe! I'm so excited!

I'm exhausted after all these months of treatment and I'm stressed to fly back to The Netherlands alone... but then I'll fly to Italy together with Federico.

My condition is still about the same so still long way to go...


Danielle Andela
28-06-2020

Dear everyone, I hope you are all well.

Here in Cheonan every day is still full of ups and downs. I had one really good week, and then I pushed it too much, I did too much and then I couldn’t move for four days...

Slowly slowly my body is getting a bit more straight and my muscle spasms are becoming less severe. For example, now my head is pulling back slowly while before it was pulling back hard and intense all the time.

With dystonia, you normally have so much pain and tension in your body that it is hard to feel anything. Now slowly I become more aware of how my body is not straight. My hips/pelvis are tilted, my shoulders are not even, my spine is curved and my neck is not straight. My eyes are having to adjust also every time my head gets a bit more straight.

Walking has been the most challenging so far (imagine someone pulling your head back by grabbing your hair and your back falling backwards and then try to walk). But lately the physical therapist here has been awesome in helping me by breaking down all the steps of the general walking movement and practicing super slowly how to roll my feet, use my toes and shift your weight from your left to your right leg when you walk. Because of my dystonia, my whole body has been tilted to the right for two years, putting all the weight on my right leg only. I have to train my brain and body again to walk correctly now and it’s super intense, but slowly it’s getting easier.

I also managed to put my chin almost to my chest again after trying to do so for four months!! Victory! 

It’s been about five months now being here by myself. On days when I think I cannot go on anymore, I am touched by some kind words or actions from people around me. Like my sweet former IDLO-colleagues sent me a box from The Netherlands full of cards with heartwarming messages and gifts. Another day, a Korean patient here who is a nun gave me a Rosario and two little statues of angels (one for me and one for Luca). Also an older Korean male patient brings me homemade kimchi as I love spicy food. The Korean staff and patients are so nice and I feel like they take care of me, even if I hardly speak any Korean. I really respect them. Koreans are so polite, sweet, funny and caring. One Korean nurse here printed out some photos from Luca here on small postcards and made me a nail clipper with my name on it.. ^_____^

It shows how even in times of hell, life still has so many beautiful joyful moments because of human interactions. All the patients here are going through the same painful moments and ups and downs, we try to help and support each other and smile through our pain and tears - even without speaking each other’s language. 

I had 180 sessions now. I spend way over 30,000€ only on medical treatments here (my insurance covers nothing..). Without your financial support this would not have been possible. 

I recovered around 50% now. Recovery is based on your own interpretation. Mine is based on the fact that I am not taking any medication anymore, I have much less pain and tension, the muscle spasms are a lot less intense, I’m less exhausted constantly and I am able to move a bit better. I can exercise better and longer. 

I still have a long way to go. But now I understand that by treating my tmj joints by splint therapy, making my c1/c2 discs in my neck stay in place and doing the right exercises I can become a lot better.

I haven’t seen my husband and son in five months. Because of the corona virus it’s impossible for them to come see me. On July 15, I will fly to Italy to see and hug them. It’s really been too long and difficult alone. I will continue my exercises and then we will have to see if I can return to South Korea after a few weeks, based on finances, my condition and the Corona virus restrictions. 

As always, many thanks for your messages and support. Wishing you lots of love xox

 


Danielle Andela
23-05-2020

Hi everyone! It's time for two days of rest again...! Today I was in the gym from 9.00 to 17.00. I need less breaks in between the exercises. Some muscles that are now not affected by dystonia anymore are super weak and need to be activated again. I'm working closely with the clinic's physiotherapist Su Young on this by doing additional exercises, for example for my abdomen.

I completed 150 treatment sessions in four months so far. Initially, Dr Lee explained how I would need at least 150-200 sessions. But for a full recovery I think I'm going to need a very long time as I was so weak in the beginning (sitting in wheelchair and not able to sit up without resting my head against a wall...). Dr Lee's treatment is great and I see patients recovering every day. I wish we would have discovered 3 years ago that what I had was dystonia and that my jaws and C2 were all messed up! But no use in thinking like that now..

It hurts like hell and worse being so far away for so long from my boys... due to corona we cannot just go see each other for 2 weeks or so.. hope for all of us things will get better soon! 


Danielle Andela
20-05-2020

Dear all, time goes so quickly suddenly. I try to take everything one day at a time, but weeks are flying by. 

I feel like a big, fat onion. Every time I peal another layer off in this treatment, there are more layers underneath. For example, my left back muscle is finally a lot less tense and suffers less from dystonia now (my left jaw is more in place). Half of my upper body is now relaxing and leaning to the left side a lot, while my neck and right back muscle are still very tense and pulling to the right. As a result, my neck is more uneven now, my hip is sticking out, and my body looks even way more not straight. I'm scared to look in the mirror.... It is frustrating after all these weeks of exercises. According to the clinic's staff it is normal to see these huge changes as my body is searching to align my spine. My shoulders pop in and out all the time as well now, aaauu!!

Moreover, the muscles that do not suffer from dystonia/hypertension anymore are now totally "asleep" and weak. For instance the muscles in my left hip, belly and left arm and leg. I'm working with the clinic's physical therapist now to strengthen my core. You would think that muscles that have been working overtime for several years would still remember how to work... guess not!!

I am able though to do a bit more every day and I feel less exhausted all the time (sometimes before I didn't even have the energy to make or eat lunch or dinner...). Walking is still very difficult. The skin of my face is still red like crazy as a reaction of the treatment.

I'm fighting this horrible dystonia disease but the b*tch is trying to fight back hard.... I'll keep fighting!!!


Danielle Andela
06-05-2020

Oh and thanks everyone so much for your continuous support!! <3


Danielle Andela
06-05-2020

Dear all, sorry I have not written earlier. I have been having a bit of a hard time. I hit the three months mark, and even though I am trying hard to take things day by day (and not plan everything months ahead like I used to do...), it forced me to think about how things are going. Having your body not listening to you on a daily basis, being in pain, tension and discomfort all the time, and feeling like you will never get better sometimes really can put you in a bad mental state of mind. I was just tired and exhausted 100% of the time. 

People back home are asking me when I am done and going home. You see, that's so difficult to answer. I'm putting in all the effort but I cannot force my body to just be better.

But.. just now I managed to walk (with Nordic walking sticks) for 15 minutes! I could keep my head down (it's not straight at all though) a bit better than normal. FInally finally something is becoming less difficult!! Earlier today I walked 10 minutes. It's beautiful weather and that helps as well ^____^  I have to keep fighting!!! 💪


Danielle Andela
26-04-2020

Dear all, this week I tried to do three jaw adjustments instead of two a day. This means quicker progress but more impact on your nerves and muscles. We also went to a beautiful temple and huge amazing buddha with Dr Lee and some patients (although I could hardly walk). As a result, this weekend I am completely exhausted. Like always, if you push yourself harder, you will notice it. I now feel like I am "drunk" all the time as large parts of my body start to relax and get tense more frequently. 

Overall progress has been slow. The body needs to heal and realign in its own pace. The problem is that my jaws are out of balance, which messes with nine cranial nerves that are connected to my spine, messing up my spinal structure and make over 136 muscles in my body contract when they should relax...

But I continue to fight! I know Dr. Lee's treatment is working. I need to be patient. I am on the right path, I just need to make it to the finish line...


Danielle Andela
18-04-2020

Dear all, ... and yet another week has flown by. It started kind of okish but then here were soooo many changes in my body. My back muscles have relaxed a lot more, but this made it harder to walk as my head would kind of fall back if I start to move. Dr. Lee stressed the importance of walking, so Friday after the day at the clinic I went to get my wheelchair and I walked outside behind it for about one hour. I bumped into a fellow-patient from Australia and her mother and we had a nice coffee and I could rest before walking back home. 

Tonight, I walked again with my wheelchair all the way to a nice burger place (where Federico used to buy some burgers), which was a lot further away then I thought, but I made it there, had a nice cheeseburger and walked all the way back. Now I am exhausted! But it's so nice to go outside again. It's crazy, for over a year I've been stuck inside the house while the whole world could go outside. Now with the Corona virus, everyone back home has to stay inside and I am here, able to go out and have dinner. A huge milestone for me! I even went to the hairdresser to have my hair washed.

My body is becoming straighter but now it is also more obvious how not straight my neck is... I am scared to look in the mirror now. I hope my neck will catch up shortly as well....

Have a good weekend everyone!


Danielle Andela
17-04-2020

Hi Everyone, the last few days I had so many changes in my body. The whole time when I am resting or doing exercises, I suddenly hear and feel a loud 'crack' or 'pop' and I feel my whole hip going in a different place, or my shoulder moves its position. It's freaking me out a bit. Especially because my neck is now suddenly tilted (earlier it was only my head) and when I look in the mirror, I see my body is not straight at all. Something is happening at least.. 


Danielle Andela
11-04-2020

Dear all, I like to write positive news, but this week has been really hard. My head is pulling back and the muscles in my left leg are so tense that I have a very difficult time to stand up and walk. I felt exhausted the whole time. My thoughts became very negative as well, you start doubting the treatment, asking yourself when this nightmare is ever going to end. I feel like I am fighting my body the entire time, and I am just so very tired of it. On top of it all, I am missing my husband and little boy like crazy. I was crying a lot this week.

If I tell Dr. Lee about the negative effects I am experiencing, he is just saying 'good, healing crisis'.

It has been 2,5 months now. I can not expect to be better from this condition in just a few weeks, while most people suffering from Dystonia need Botox injections or a Deep Brain Simulation surgery, but secretly I hoped I would have been a bit better than what I am by now. I am forcing myself to take it one day at a time and not think too much about how much I have been missing out of life these last few years, or how long I still have to be here. I just drag myself to the clinic, do the treatments and exercises, and try to accept how my world has frozen and has become small (I'm sure most if you can relate to this with the current pandemic going on).

On the bright side, the great government of South Korea has extended my visa from the end of April to the end of May, with the possibility to extend after that. That's a relief.

I'm hoping to have some more positive update next time!


Danielle Andela
07-04-2020

Dear all, this weekend I was so exhausted. I couldn't even lift my arms or stand up. The bones in my spine, neck, shoulders, hips and anckles were making loud cracking sounds all the time. I managed to drag myself to the clinic for a full day of treatments today. Hence, a big healing crisis once more, which will hopefully end shortly.


Danielle Andela
02-04-2020

Dear all, Tuesday evening I was laying down on my side, when suddenly I heard a very loud 'CRACK'! It felt like someone had kicked very hard against my rib cage and for a few moments I couldn't breath. Then I realised a disc in the middle of my spine had gone back into its position. I could feel how certain areas and nerves in my hips started to relax. The red spots in my face had disappeared. 

The next day, it was so much easier to stand straight! My legs and hips were less stuck. Sitting was also less difficult. It's hard work to realign your spine again but this was a good sign! It's only a pitty that I have had a huge headache for the last two days now and I am feeling very nauseous (probably a reaction to the change), and worse of all, my neck and head are all tilted to the right side again... which makes it hard to walk again.

This is a bit of a taste of the process which I'm going through here. It really is a step-by-step thing. Every step forward, means also a step backwards. I guess you can compare it with training for a 10K-run. While you train, you are "destroying" your muscles in order to make yourself stronger. And sometimes you push yourself too much, and you have to pay for it the next day. But you have to keep on pushing and trying. Don't give up! It feels disencouraging sometimes, because you try so hard and it can feel like you're never going to get there. But I know I'll get there.. no matter how long it takes!


Danielle Andela
31-03-2020

Dear all, it's been a while since my last update. I haven't been able to log into this page via my laptop for the last few days somehow... so now updating you via my phone.

I want to thank you again for all your support, messages and thoughts. I have now completed over two months of treatment. I still feel my overall recovery is an average of 50%. I can move easier and daily activities such as cooking are now getting a bit easier to do.

I had a rough week last week. I was very tired and my back was killing me. In the weekend I felt much better luckily and I was able to walk to a small supermarket closeby that my fellow patient Valeriy from Russia told me about a while ago. Valeriy has been so very kind to go and get me fresh veggies and fruits every weekend. So nice! I'm trying to eat as healthy as possible to help my recovery (although I lost a lot of weight so I'm also eating crisps and ice cream sometimes to gain some..).

Sometimes I do something simple like brushing my teeth, and I realize suddenly that the amount of pain and tension I experienced for the last few years is almost gone. It makes me super happy.

I now dare to dream again of getting my life back with my boys soon.

A not so nice side effect of the treatment is that my face is all red and swollen, like Im having an allergic reaction... Dr Lee says it will pass.

I stopped watching the news because I got so depressed... but I think about all of you every day. Please be safe and stay inside 


Danielle Andela
21-03-2020

Dear all, a week has flown by. When I came home from the clinic, I was watching the news all the time. I was so relieved to see that the Netherlands has now also finally taken stricter measures to fight the Corona virus. Here, the Korean government took measures quick (schools closed, everyone was getting tested), while complete lock down was avoided. And it worked. The government kept control andd within a few weeks everyone can now go back to normal life. In Cheonan (the city I am staying in), there are 700,000 inhabitants and the total number of infected people was 95, noe one died (no new cases have been added for 1,5 week now). I hope the situation here stays the way it is, and that the situation in the Netherlands and Italy is under control very soon. I am very sad to hear about the rising number of people dying. 

Like many other families, I wish I was with my husband Federico and son Luca now. Luca is with my amazing parents-in-law in Sicily, where people have to stay inside. Fede is now in quarantine for 14 days also in Sicily (he cannot see Luca or anyone of our family). Our uncle is very sick and in the hospital in Palermo (not C-virus, something else) and he is all alone. His wife cannot see him. Two of his daughters are in Northern Italy and cannot go to see him... It breaks my heart. Please stay inside everyone.

This week my back has been very painful and has been pulling my body backwards all the time. It is exhausting trying to pull my body to the front all the time and very difficult to walk. I am more straight now, but my head is tilting to the right and back a bit. Today, I only did the treatment in the morning and then I slept from 13.00-18.00. I really need to rest this weekend. 

My left arm is now starting to lose its strength again. This was one of my first symptoms, so I hope it's a good sign. Time to rest now...


Danielle Andela
14-03-2020

Dear Everyone, it is time for the weekend again! It's been a weird week. Of course hearing about the developments around the world regarding the C-virus. But also as I had a healing crisis in the beginning of the week, which made it hard to do all the exercises, after which my whole body became much more relaxed. I feel like 50% recovered now. Dr. Lee was happy to hear this (he said I recovered 50% last week already when I still felt like 20-30%....). I just feel so much better now that about 80-90% of all the pain and tension in my body (especially my neck and shoulders) is gone! I'm not taking any kind of medication or painkillers at all anymore! Yaaaay!!! This is all thanks to Dr. Lee and his treatment. Now, it's up to me to continue to exercise and keep positive! Dr. Lee assured me that in a few months time this will all be part of the past and just a distant memory. 


Danielle Andela
12-03-2020

Hi all, I was able to do two treatments with Dr. Lee today. Just when I was so happy the right side of my body didn't suffer from spasm attacks anymore (my right shoulder can finally relax again), my left leg is now sometimes shaking and feels very painful. Also, my left lower back is killing me, which makes it very difficult to walk again. Luckily, a burning pain in my left lower back and upper leg (sciatica or 'SI-gewricht') was my very first symptom/complaint three years ago. According to the Law of Cure, "when a chronic disease is being cured, its process goes back the exact same process that the disease had occurred." In other words, “when a human body changes from a ‘state of disease’ to a ‘state of health’ through treatment, the chronic disease disappears and the body regains its normality. In this process, new symptoms occur, and the body experiences a ‘rewinding process,’ which replays the same process that the disease had intensified, backwards.” I remember how three years ago I thought my pain occured because I gave birth to Luca a few months earlier. So hopefully this is a very good sign!


Danielle Andela
11-03-2020

Dear Everyone, this week started different than I thought it would. Normally, I am completely exhausted in the weekend, sleep a lot, and then on Tuesday I am all ready again to go do the treatments and hit the gym. This Tuesday (yesterday), I was actually more sleepy than ever. I felt so relaxed. But also very sleepy. Dr. Lee was very happy to hear this, as he says this is part of the recovery process, and that now I should rest a lot. It just feels so weird to me because I am so relaxed but I am so weak that I cannot walk anymore or keep my head up. It is so weird that now my body is able to relax again after not being able to for three years. So in the morning I went to do the treatment but in the afternoon I dragged myself back home to rest. For those of you who know me for the little Ms. Perfectionist and Competitive as I am, not being able to do all the exercises feels like a huge failure.. but hey, I'm also having the biggest headache ever and my stomach is upset which means we are dealing with another wonderful healing crisis again. Let's see how things are tomorrow morning.... 


Danielle Andela
11-03-2020

WOW! We passed the 20,000 EUR!!!!! Thanks so much everybody! This is amazing!

 


Danielle Andela
09-03-2020

Hi Everyone, unfortunately, my friend Widya never made it to South Korea as her flight with Turkish Airlines was cancelled. Perhaps she will visit me in a few weeks.

Last Saturday, Dr. Lee told me he thinks I have improved 50%, based mainly on the fact that the muscle tension and pain in my body is considerably less. It's also much easier for me to relax right now. I can lay down on my left side now (before I could only lay down on the right side of my body), and thank god the spasm attacks are almost gone now. I gave myself 20%, because it is still very difficult to sit, stand and walk for me, but I am positive that by doing the exercises I will get better soon. For the last two days, I haven't been able to do much. My body is able to relax so much better now and laying down is not a problem anymore, but when I stand up I feel like Bambi trying to walk on ice for the first time (and I don't look as cute as Bambi)... I'm happy my body got some rest because tomorrow morning it's back in the gym again....


Danielle Andela
03-03-2020

Hi Everyone, today was the first day of treatment week again. I did not do much over the weekend but only rested and slept. I felt like I could have slept for a few more hours when I woke up this morning, but I got myself back at the gym at 9.00 again.

I'm getting better in the main exercise we have to do during the day - the famous almighty 'Cervical Gravity Stretching Exercise' which consists out of 12 positions to stretch and strengthen different muscles in your neck, back and other parts of your body. On my first day at the clinic, I could only do one position for 30 seconds. I was very weak after not being able to do anything for over a year (duhhh)... Slowly slowly I increased the time for each position with a few minutes each week. Now, I am able to do eight minutes as of today. This might not seem like much, there are some patients who manage to do 10-20 minutes for each position. But it's a huge achievement for me. I'll try to hit ten minutes by the end of this week! This exercise will really help me to recover, so I hope to get better in it each day. Completing this exercise alone is already 12 x 8 = 96 minutes a day. And then we still have some other exercises to do that are also taking a lot of time. Dr. Lee also wants us to walk one hour a day. Unfortunately, I can only walk 2 x 10 minutes on a good day (those days don't occur that often), but I'll get there. During this rehabilitation process, as always, when you try to work harder or do your best more, you get "rewarded" for it by a lot of pain in nice new places... also I really had to drag myself out of the clinic back home, I almost couldn't walk anymore. 

I'm super excited and happy that my friend Widya from The Hague is coming to visit and take care of me this Thursday evening. Can't wait! I'm so lucky. 


Danielle Andela
29-02-2020

Today was the last day of this treatment week. I am completely exhausted and ready for the weekend. My body is so tired. It is very quiet at the clinic now because of the corona virus. Many Koreans and overseas patients are scared. Besides a group of Koreans, there are only one Russian man, a man from Hong Kong, a boy from Uzbekistan, a lasy from the Netherlands and myself, left. We're following the news in the Netherlands as well.


Danielle Andela
26-02-2020

Hi Everyone, today I walked to the clinic without a wheelchair again and I did three sessions with Dr. Lee again as well. Then I went to the grocery store (below my apartment building) and did some food shopping, washed my hair, and did a laundry! This might not seem special to you at all, but just a few months ago I would only be able to wash my hair and I'd be exhausted for the rest of the day. 

 

I also just saw the Netflix documentary 'Heal' and it was very inspiring. Dr. Lee is always telling us how powerful a positive mind can be - similar to the message of this documentary. So I am visualising all the time now that I am better, that I can move and walk again (without pain or tension) and can go home soon to my two amazing boys. I am picturing myself being able to sit normal again and being straight again. I am trying to think about all the things in my life that I am grateful for.. my amazing loving and patient husband, my cheeky little monkey son, my supporting and loving family, in-laws and great friends. Staying strong!! 


Danielle Andela
25-02-2020

Hi Everyone, I would like to inform you that Chungcheongnam Province, where Cheonan (the city I am in) is located, has known no persons infected with the corona virus so far. So please don't worry.


Danielle Andela
25-02-2020

Today was the first day of a new treatment week. For the first time, I managed to do three sessions with Dr. Lee in which he corrects your jaws and neck (this is the maximum and I normally do 1-2 a day). I also normally walk to the clinic (3 minutes from where I am staying...) behind my wheelchair - but today was the first day I went without wheelchair. As a reward, I am now having a huge spasm attack at home at the end of the day..... I'm getting used to it by now...! :-s


Danielle Andela
21-02-2020

Day four of the treatment for this week has passed. One more day to go. Today I managed to do two sessions with Dr. Lee. I am still experiencing a lot of spasms (especially in my right shoulder and neck) all the time which make it very hard to relax, lay down or sit. All part of the healing process.... As soon as I am able to relax for five minutes, I right away have a lot more energy to do the exercises. I am wearing a mouth splint the whole time that I should bite harder in order for my body to relax more.

At the moment, besides the Korean patients, there are international patients from Canada, Australia/Italy, the Netherlands, Austria, Russia, Finland, Hong Kong and Uzbekistan. Most of them are improving fast, while I just feel like I am going getting worse... need to hang in there!


Danielle Andela
20-02-2020

Hi Everyone, this is Danielle. The last two days, I have been going to the clinic for treatments, after which I come home and just have enough energy to eat and shower. Last evening, I came home and felt relaxed for the first time in a very long time. I was laying on my bed for hours and was afraid to move, because t felt so good to hardly feel any pain or tension in my body. My head wasn't pullng back, my back wasn't pulling back and my right shoulder was not constantly shaking. But then of course this morning when I went to the gym, I had a huge spasm attack with my head pulling backwards hard every few seconds. I couldn't do any exercises. I did the treatment session with Dr. Lee for my jaw, and then thankfully a nice hard/strong cupping session by the lovely Korean ladies in the clinic helped to stop the spasm. I was exhausted and went home, fell asleep and slept for four hours.

The treatment and process of getting straight again is really really intense. So many muscles, bones and nerves have been in the wrong place or have been blocked for such a long time. Trying to get everyting the way it was is super tough. It is really an internal batlle. It feels like taking one step forward, and two steps back all the time. Dr. Lee is always inspiring us to think positive as it helps the healing process, so I am trying to do that as much as possible. 

 

 


Danielle Andela
17-02-2020

It has been snowing in Cheonan. Outside you can see a beautiful white layer of fluffy snow. Luckily Danielle stays in a small studio just across from the clinic. Today the clinic is closed, which means exercises, noodle soup and Netflix at home. Danielle's jaws are starting to make a lot more clicking and popping sounds, which should be a good sign and could mean her jaw joints are slowly getting back into the right place. 


Danielle Andela
14-02-2020

The story of a former patient of Dr. Lee from the UK who recovered 100%. Hope my story will be similar one day: https://curefordystonia.com 1 


Danielle Andela
14-02-2020

Thanks again for all your messages and support everyone and Happy Valentine's Day!

 

Last night, Danielle's jaws were back in place for several minutes. When this happens, her whole body relaxes and the dystonia disappears. The trick is now how to get into this status of relaxation while moving, walking. Today at 14.00, Danielle went home because she really needed to sleep. Normally she's in the gym of the clinic every day at 9.00. This is physically and mentally the hardest thing that Danielle has ever done. The exercises are very hard. The cupping twice a day very painful.. One more day to go and another week has passed. Let's do this!


Danielle Andela
11-02-2020

Today was the whole day back at the clinic again. In the weekend, Danielle had many spasm episodes again, although less intens. Her body is having an internal battle as nerves and muscles are now having to get used again to standing straight. It's funny that walking and running is going a lot better now, but sitting has become very difficult. The aim for this week is to do the session with Dr. Lee twice a day now, while increasing the length of the exercises. Unfortunately, Federico will be flying again from tomorrow morning again. At least, Luca will get to see his dad soon again.


Danielle Andela
08-02-2020

Today was the last day before the weekend (in South Korea the weekend is Sunday-Monday). Danielle managed to go to the clinic this morning, but was very exhausted afterwards and slept from 15.00-19.00. Doctor Lee told her from day one that the first month was going to be very hard with a lot of 'healing crisis'. The first 2/3 weeks have indeed been very very challenging with some heavy lows and a few highs. The latter do give a lot of hope that this treatment is actually going to work. Luckily, Federico is still in Cheonan with her. For now, it's time to rest (and exercise) for two days....


Danielle Andela
07-02-2020

Unbelievable! We reached 61% of our target! 17.560 EUR! This is so amazing. Thanks so much everyone!


Danielle Andela
06-02-2020

What a great morning here in Cheonan! Danielle woke up straight and full of energy. Her jaws were in place and not making much sounds like they usually do. In the clinic, she could walk also almost normal again during the consultation with Dr. Lee and the other foreign patients. There were some tears of happiness from Danielle and some other patients. Hope


Danielle Andela
04-02-2020

Hi Everyone, the healing crisis continues... and it's still a very good thing, according to Dr. Lee. Danielle's right shoulder keeps on shaking and it is very difficult for her to sit or stand right now. She is trying to do the exercises as much as possible. If she has a good moment, she tries to walk. Sometimes her head pulls strongly to one side (usually the back or right) for a few seconds and then suddenly lets go. Her body is having an internal battle. Can't wait for another "up"...


Danielle Andela
01-02-2020

Yeah!! Last evening Danielle thankfully had hardly any spasm attacks! This morning she woke up really straight and feeling stronger! In South-Korea, the weekend is on Sunday-Monday, so she will be heading to the clinic in a bit again for the last treatment of this week. For sure, there will be a lot more ups and downs in the healing process, but it's so nice to have "an up" now.... ^____^


Danielle Andela
01-02-2020

Understanding Dr. Young-Joon Lee's treatment, TMJ Balancing Therapy:

 

1. Dr. Young-Joon Lee's Primary Therapy (Major Therapy)


Can the treatment method which I have created over the course of 30 years actually help you? I figured it interests many of you, so I will now introduce my treatment method in a more detailed manner.

"TMJ balance therapy" is not a treatment that cures one certain disease. It is a treatment that restores the vertebrae of the whole body to its normal position from the first cervical spine to the coccyx. In short, it is a treatment that normalizes the blocked passage from the brain to the body. By normalizing all energy pathways, including cerebrospinal fluid, blood, oxygen, and lymph, this treatment simply helps the natural healing power, inherent in our bodies, to work on its own. Therefore, it helps to treat most chronic diseases related to spinal diseases or immune function. Therefore, whatever the disease, I do not consider its name important. Fundamentally, I believe that most of the incurable diseases in our body are caused by blocked passages between the brain and the body.

Accordingly, I consider the treatment, that normalizes the blocked passage in our bodies, the key point. However, I simply restore the second cervical spine to its normal position, in order to make the blocked passage a normal one. Also, I simply balance the TMJ in order to restore the second cervical spine to its normal position.

TMJ imbalance (negative signal) has two mechanisms that cause abnormalities in the central and peripheral nervous systems. In addition, TMJ has the ability to directly or indirectly cause abnormalities in the spine and nervous system. In addition, both TMJs have the largest distribution of C fibers. Next, it is distributed in C0 (magnum foramen), C1 (atlas), and C2 (axis). This is because C fiber has several mechanisms that cause chronic diseases through multiple pathways.

Therefore, I do not put much significance to the name of the disease of each patient. I am not a doctor who heals one certain disease, I am only a doctor who normalizes the patient's unbalanced spine. Because of that, I am just the guide, who leads patients to the best way for the of their spine and nervous system, walking together with them to get to their destination safely and quickly.

Accordingly, I make two diagnoses to see if I can be their guide. One is the presence of a subluxation in the second cervical spine. It is essential that subluxation is confirmed. Another is the association between subluxation of the second cervical spine and imbalance of TMJ. I do three diagnostic tests to confirm this.  If the second cervical spine is misaligned, he must have three factors, and if he wears an IBA, the three factors will disappear immediately. This is because when the three factors disappear, the second cervical spine returns to the normal position at the same time. This is because IBA turns off the negative signals of the nine cranial nerves from both jaws. Once these factors are confirmed, the name of the disease is not important to me. This is because most of the symptoms will disappear if the patient's general spine returns to normal. I believe most of the positive changes will further occur if the correlation between the subluxation of the axis and the imbalance of the temporomandibular joint is confirmed. Because my therapies can be the best guide for them.


2. Dr. Young-Joon Lee's Secondary Therapy (Dr. Lee's complementary therapies)

(1) Dr. Lee's upper cervical alignment Therapy
(2) Dr. Lee's acupuncture Therapy
(3) Dr. Lee's herbal medicine Therapy
(4) Dr Lee's cupping therapy
(5) Dr. Lee's craniosacral therapy
(6) Dr. Lee's pelvic balancing therapy
(7) Dr. Lee's spinal balancing therapy
(8) Dr. Lee's cervical Traction Therapy
(9) Dr. Lee's exercise Therapy
(10) Dr Lee's stretching therapy
(11) Dr. Lee's psychotherapy


Danielle Andela
31-01-2020

Hi Everyone, every day when Federico and me wake up we are amazed by all the sweet messages and the amount of support we are receiving from all of you. Our dear family members, friends, friends of friends, and even people we do not even know but are still trying to help us. We are deeply touched in our hearts. Can't believe we raised over 15,000 EUR already... 55% of our target. Thank you, thank you, thank you!!


Danielle Andela
29-01-2020

Hi Everyone, the last two days were really rough... Danielle has really got to get used to the intense treatment. She is having a lot of spasm attacks, sometimes continuously for hours (think "Exorcist"...), after which she just passes out. According to Doctor Lee, this is all part of the process. First, you get a lot wore before getting better. The body has got to get used to the realignment. 

 

A normal day at the clinic looks kind of like this:

09:00 Exercises/physiotherapy at the gym

10:30 Medical consultation with Doctor Lee (splint/jaw/neck realignment)

11:30 Accupuncture and cupping

12:00 Exercises/physiotherapy at the gym

13:30 Lunch

14:30 Medical consultation with Doctor Lee (splint/jaw/neck realignment)

15:00 Cupping

15:15 Exercises/physiotherapy at the gym

16:30 Medical consultation with Doctor Lee (splint/jaw/neck realignment)

17:00 Cupping

17:15 Exercises/physiotherapy at the gym

18:00 End

 

Then, you should go walking outside for one hour and running for at least twenty minutes... Danielle can walk three minutes now. You can have one, two or three consultation with Doctor Lee a day. The realignment of the jaw and neck is pretty intense. Doctor Lee suggested that for the rest of this week, Danielle only follows part of the daily program due to her spasm attacks. Danielle is doing her best to get stronger every day!

 


Danielle Andela
27-01-2020

 

Yesterday evening, Danielle had two 'healing crises' or spasm attacks again for 30-60 minutes. First some muscles on the right side of Danielle's neck wanted to say hello and then Danielle's right shoulder started to have a party by its own before going to bed.... It's scary and not fun at all, but it does mean that the treatment is starting to work and a lot of things are happening... Let's do this!

 

We can't believe we passed the 10,000 EUR! Thank you so much everybody. 

 


Danielle Andela
26-01-2020

Happy New Year South Korea! While the clinic is closed today, Danielle is busy with doing exercises, such as these ones. The first month of therapy, it is normal for patients to experience a 'healing crisis'. Patients are asked to be aware of various physical changes (myung-hyun reactions, deflections) that occur during the treatment process until their symptoms are completely cured. The human body responds to medical treatment through what is called the Law of Cure, as explained by Dr. Constantine Hering. For more information, see Doctor Lee's website here.

Danielle is also experiencing many ups and downs. One moment she is straight and the other she has a five minute spasm attack in which she cannot control her body at all... a good sign as it means something is happening!

And wow, we already reached 30% of our crowdfunding campaign goal (for three months of therapy) in just 24 hours! It's amazing! We are overwhelmed with all the support. Thank you!!

 

 


Danielle Andela
25-01-2020

25 January 2020: Crowdfunding campaign going live! Thanks for your support


Danielle Andela
25-01-2020

21 January 2020: first medical consultation with Doctor Lee. He says he can help Danielle!


 

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