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HELP DANIELLE WITH HER FIGHT AGAINST DYSTONIA

Behandeling tegen Dystonie in Zuid Korea Treatment against Dystonia in South Korea

 

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HELP DANIELLE MET HAAR STRIJD TEGEN DYSTONIE 
 
Behandeling tegen Dystonie in Zuid-Korea
 
Mijn naam is Danielle (36). Ik ben getrouwd met Federico (35) en moeder van ons zoontje Luca (3). De afgelopen twee jaar lijd ik aan Dystonie. Ik kan mijn spieren in mijn lichaam niet meer controleren. Opstaan of lopen gaat nauwelijks.
 
Wat begon met een tintelend en dof gevoel in sommige vingers in mijn linkerhand, ging al snel verder tot het niet meer kunnen gebruiken van mijn linkerarm en -schouder. Onderzoeken in het ziekenhuis kwamen op niets uit. Ik begon met fysiotherapie maar de klachten werden langzaam alleen maar erger. Lopen werd erg moeilijk omdat mijn bovenlichaam steeds meer naar rechts begon te staan. Een paar maanden later begon mijn hoofd ook sterk naar rechts en achteren te trekken. Het was onmogelijk om mijn hoofd recht te houden. Mijn hele bovenlichaam trok hard achteruit als ik alleen maar probeerde op te staan. Ik werd gek. Wat was er mis met me? Ik moest me ziek melden op mijn werk. En toen werd ik volledig afhankelijk van andere mensen om voor mijn zoontje te zorgen, voor ons te koken, om me naar het ziekenhuis te brengen. Mijn leven was kapot, ik was gevangen in mijn eigen lichaam.
 
In maart 2019 stelde een neuroloog diagnose 'Dystonie'. In Nederland wordt deze aandoening behandeld met Botoxinjecties in je spieren. Dit hielp mij een beetje om weer te kunnen zitten. Maar de Dystonie bleef te sterk en ik kon niets meer doen. Ik was kapot na drie stappen lopen. Ik lag heel de dag in bed of op de bank. Door de spierspasmes kon ik 's nachts niet slapen. Medicijnen hielpen niets. De volgende optie zou Deep Brain Surgery (DBS) zijn.
 
Ik wil mijn leven terug. Ik wil weer lopen. Ik wil weer mama en echtgenote kunnen zijn en naar buiten kunnen gaan...
 
Toen hoorden we over een Nederlandse vrouw die dankzij een behandeling in Zuid-Korea bijna volledig hersteld was van haar Dystonie. Dokter Lee Young Jun heeft ruim 30 jaar succesvol ervaring met het behandelen van mensen met Dystonie van over de hele wereld. Hij focust zich op de oorzaak van de Dystonie per person, in plaats van symptoombestrijding. Zijn 'Functional Cerebro Spinal Therapy’ (FCST) is een intense behandeling gericht op het corrigeren van de kaakgewrichten, schouders, wervelkolom en bekken. Je lichaam wordt weer recht.
 
Op 19 januari besloten Federico en ik ervoor te gaan en namen het vliegtuig naar Zuid-Korea. We hadden niets te verliezen. We ontmoetten dokter Lee die gelukkig zei dat hij me kon behandelen. We zagen alle Koreaanse en buitenlandse patiënten in zijn kliniek die herstelden. Er was weer hoop!
 
Ik ben nu begonnen met de intense revalidatietherapie van dokter Lee die bestaat uit vele behandelingen van 9.00-18.00 elke dag, zoals medische consultaties met dokter Lee voor problemen met mijn kaken (‘temporomandibular disorder’ of TMD), accupunctuur en speciale fysiotherapie. Het kost waarschijnlijk minimaal drie maanden voor mij om te herstellen. De behandeling in Zuid-Korea is de enige kans om mijn leven weer terug te krijgen.
 
Behalve vliegtickets en accommodatie in Zuid-Korea, kost één maand therapie 9.500 euro. Voor drie maanden behandeling hebben we 28.500 euro nodig. Dit hebben wij helaas niet… Daarom vragen we aan iedereen die dit leest om hulp. We zijn voor eeuwig dankbaar voor alle steun. Deel dit bericht alstublieft zoveel mogelijk. Heel erg bedankt…

 

In deze video legt dokter Lee meer uit over dystonie en zijn behandeling: https://www.youtube.com/watch?v=9NqBzpRjPZQ 

 

Dit is de website van de Lee Young Yun Clinic in Cheonan in Zuid-Korea: http://www.fcstnet.com

Volg mijn herstel ook via de Facebookpagina van dokter Lee: https://www.facebook.com/groups/cervicaldystonia
 


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HELP DANIELLE WITH HER FIGHT AGAINST DYSTONIA 
 
Treatment against Dystonia in South Korea
 
My name is Danielle (36). I am married to Federico (35) and mother of our little boy Luca (3). For the last two years, I have been suffering from Dystonia. I cannot control my muscles in my body anymore. I cannot stand up or walk.
 
What started with a tintling and numb feeling in some fingers in my left hand, went on with me not being able to use my left arm and shoulder anymore. While seeing many medical specialists and starting physical therapy, the complaints just got worse. It slowly started to become more and more difficult to walk as my upper body started pulling to the right. A few months later, my head start pulling to the right and the back strong. It was impossible to keep my head straight. My whole upper body was pulling backwards if I only tried to stand up. I was freaking out, not knowing what was wrong with me. I could not go to work anymore. And then I became totally dependent on other people to help take care of my son, cook for us, to accompany me to the hospital. My life fell apart. I was trapped in my own body.
 
Then in March 2019 a neurologist diagnosed me with Dystonia. In the Netherlands, Dystonia is treated with Botox injections in your muscles. This helped me a little bit to be able to sit up, but still I could not do anything. I was exhausted after taking three steps and ended up just lying on the bed or couch the whole day. Because of all the muscles pulling, I could not sleep at night. Different kinds of medication did not work. Another option in the Netherlands is to have a Deep Brain Surgery (DBS).
 
I want my life back. I want to walk again. I want to be a mother and wife again and be able to go outside of my house.  
 
Then I heard about a Dutch lady that recovered almost fully from Dystonia thanks to a treatment in South Korea. Doctor Lee Young Jun has 30 years of experience curing people with Dystonia from all over the world by focusing on what caused the Dystonia instead of fighting the symptoms. Doctor Lee has got a great success rate. His 'Functional Cerebro Spinal Therapy' (FCST) is an intense treatment, which focuses on correcting the jaw joints, spine and pelvis, and make your body straight again.
 
On January 19, Federico and me decided to go for it and took a plane to South Korea. We had nothing to lose. We met Doctor Lee who fortunately said he could treat me. We saw all the Korean and foreign patients in his clinic who have made remarkable recoveries. There was hope again!
 
I have now started Doctor Lee’s intense therapy that consists out of many treatments from 9.00-18.00 every day, consisting out of medical consultations with Doctor Lee for my jaw problems (temporomandibular disorder or TMD), acupuncture and special physiotherapy. It will take at least three months of therapy for me to get cured. The treatment in South Korea is unique and is my one chance on getting my life back.
 
Besides the flight tickets and accommodation in South Korea, one month of therapy alone costs 9.500 EUR. For three months, we need a total of 28.500 EUR. These total costs are impossible for us to pay… Therefore, we reach out to everyone who reads this to please help us. We are forever grateful for any of your support. Please do share this message as much as possible. Thank you so much…
 


In this video Doctor Lee explains more about dystonia and his treatment: https://www.youtube.com/watch?v=9NqBzpRjPZQ  

This is the website of the Lee Young Yun Clinic in Cheonan in South Korea: http://www.fcstnet.com

Follow my progress via Doctor Lee’s Facebook page: https://www.facebook.com/groups/cervicaldystonia
 

Danielle Andela
25-02-2020

Hi Everyone, I would like to inform you that Chungcheongnam Province, where Cheonan (the city I am in) is located, has known no persons infected with the corona virus so far. So please don't worry.


Danielle Andela
25-02-2020

Today was the first day of a new treatment week. For the first time, I managed to do three sessions with Dr. Lee in which he corrects your jaws and neck (this is the maximum and I normally do 1-2 a day). I also normally walk to the clinic (3 minutes from where I am staying...) behind my wheelchair - but today was the first day I went without wheelchair. As a reward, I am now having a huge spasm attack at home at the end of the day..... I'm getting used to it by now...! :-s


Danielle Andela
21-02-2020

Day four of the treatment for this week has passed. One more day to go. Today I managed to do two sessions with Dr. Lee. I am still experiencing a lot of spasms (especially in my right shoulder and neck) all the time which make it very hard to relax, lay down or sit. All part of the healing process.... As soon as I am able to relax for five minutes, I right away have a lot more energy to do the exercises. I am wearing a mouth splint the whole time that I should bite harder in order for my body to relax more.

At the moment, besides the Korean patients, there are international patients from Canada, Australia/Italy, the Netherlands, Austria, Russia, Finland, Hong Kong and Uzbekistan. Most of them are improving fast, while I just feel like I am going getting worse... need to hang in there!


Danielle Andela
20-02-2020

Hi Everyone, this is Danielle. The last two days, I have been going to the clinic for treatments, after which I come home and just have enough energy to eat and shower. Last evening, I came home and felt relaxed for the first time in a very long time. I was laying on my bed for hours and was afraid to move, because t felt so good to hardly feel any pain or tension in my body. My head wasn't pullng back, my back wasn't pulling back and my right shoulder was not constantly shaking. But then of course this morning when I went to the gym, I had a huge spasm attack with my head pulling backwards hard every few seconds. I couldn't do any exercises. I did the treatment session with Dr. Lee for my jaw, and then thankfully a nice hard/strong cupping session by the lovely Korean ladies in the clinic helped to stop the spasm. I was exhausted and went home, fell asleep and slept for four hours.

The treatment and process of getting straight again is really really intense. So many muscles, bones and nerves have been in the wrong place or have been blocked for such a long time. Trying to get everyting the way it was is super tough. It is really an internal batlle. It feels like taking one step forward, and two steps back all the time. Dr. Lee is always inspiring us to think positive as it helps the healing process, so I am trying to do that as much as possible. 

 

 


Danielle Andela
17-02-2020

It has been snowing in Cheonan. Outside you can see a beautiful white layer of fluffy snow. Luckily Danielle stays in a small studio just across from the clinic. Today the clinic is closed, which means exercises, noodle soup and Netflix at home. Danielle's jaws are starting to make a lot more clicking and popping sounds, which should be a good sign and could mean her jaw joints are slowly getting back into the right place. 


Danielle Andela
14-02-2020

The story of a former patient of Dr. Lee from the UK who recovered 100%. Hope my story will be similar one day: https://curefordystonia.com 1 


Danielle Andela
14-02-2020

Thanks again for all your messages and support everyone and Happy Valentine's Day!

 

Last night, Danielle's jaws were back in place for several minutes. When this happens, her whole body relaxes and the dystonia disappears. The trick is now how to get into this status of relaxation while moving, walking. Today at 14.00, Danielle went home because she really needed to sleep. Normally she's in the gym of the clinic every day at 9.00. This is physically and mentally the hardest thing that Danielle has ever done. The exercises are very hard. The cupping twice a day very painful.. One more day to go and another week has passed. Let's do this!


Danielle Andela
11-02-2020

Today was the whole day back at the clinic again. In the weekend, Danielle had many spasm episodes again, although less intens. Her body is having an internal battle as nerves and muscles are now having to get used again to standing straight. It's funny that walking and running is going a lot better now, but sitting has become very difficult. The aim for this week is to do the session with Dr. Lee twice a day now, while increasing the length of the exercises. Unfortunately, Federico will be flying again from tomorrow morning again. At least, Luca will get to see his dad soon again.


Danielle Andela
08-02-2020

Today was the last day before the weekend (in South Korea the weekend is Sunday-Monday). Danielle managed to go to the clinic this morning, but was very exhausted afterwards and slept from 15.00-19.00. Doctor Lee told her from day one that the first month was going to be very hard with a lot of 'healing crisis'. The first 2/3 weeks have indeed been very very challenging with some heavy lows and a few highs. The latter do give a lot of hope that this treatment is actually going to work. Luckily, Federico is still in Cheonan with her. For now, it's time to rest (and exercise) for two days....


Danielle Andela
07-02-2020

Unbelievable! We reached 61% of our target! 17.560 EUR! This is so amazing. Thanks so much everyone!


Danielle Andela
06-02-2020

What a great morning here in Cheonan! Danielle woke up straight and full of energy. Her jaws were in place and not making much sounds like they usually do. In the clinic, she could walk also almost normal again during the consultation with Dr. Lee and the other foreign patients. There were some tears of happiness from Danielle and some other patients. Hope


Danielle Andela
04-02-2020

Hi Everyone, the healing crisis continues... and it's still a very good thing, according to Dr. Lee. Danielle's right shoulder keeps on shaking and it is very difficult for her to sit or stand right now. She is trying to do the exercises as much as possible. If she has a good moment, she tries to walk. Sometimes her head pulls strongly to one side (usually the back or right) for a few seconds and then suddenly lets go. Her body is having an internal battle. Can't wait for another "up"...


Danielle Andela
01-02-2020

Yeah!! Last evening Danielle thankfully had hardly any spasm attacks! This morning she woke up really straight and feeling stronger! In South-Korea, the weekend is on Sunday-Monday, so she will be heading to the clinic in a bit again for the last treatment of this week. For sure, there will be a lot more ups and downs in the healing process, but it's so nice to have "an up" now.... ^____^


Danielle Andela
01-02-2020

Understanding Dr. Young-Joon Lee's treatment, TMJ Balancing Therapy:

 

1. Dr. Young-Joon Lee's Primary Therapy (Major Therapy)


Can the treatment method which I have created over the course of 30 years actually help you? I figured it interests many of you, so I will now introduce my treatment method in a more detailed manner.

"TMJ balance therapy" is not a treatment that cures one certain disease. It is a treatment that restores the vertebrae of the whole body to its normal position from the first cervical spine to the coccyx. In short, it is a treatment that normalizes the blocked passage from the brain to the body. By normalizing all energy pathways, including cerebrospinal fluid, blood, oxygen, and lymph, this treatment simply helps the natural healing power, inherent in our bodies, to work on its own. Therefore, it helps to treat most chronic diseases related to spinal diseases or immune function. Therefore, whatever the disease, I do not consider its name important. Fundamentally, I believe that most of the incurable diseases in our body are caused by blocked passages between the brain and the body.

Accordingly, I consider the treatment, that normalizes the blocked passage in our bodies, the key point. However, I simply restore the second cervical spine to its normal position, in order to make the blocked passage a normal one. Also, I simply balance the TMJ in order to restore the second cervical spine to its normal position.

TMJ imbalance (negative signal) has two mechanisms that cause abnormalities in the central and peripheral nervous systems. In addition, TMJ has the ability to directly or indirectly cause abnormalities in the spine and nervous system. In addition, both TMJs have the largest distribution of C fibers. Next, it is distributed in C0 (magnum foramen), C1 (atlas), and C2 (axis). This is because C fiber has several mechanisms that cause chronic diseases through multiple pathways.

Therefore, I do not put much significance to the name of the disease of each patient. I am not a doctor who heals one certain disease, I am only a doctor who normalizes the patient's unbalanced spine. Because of that, I am just the guide, who leads patients to the best way for the of their spine and nervous system, walking together with them to get to their destination safely and quickly.

Accordingly, I make two diagnoses to see if I can be their guide. One is the presence of a subluxation in the second cervical spine. It is essential that subluxation is confirmed. Another is the association between subluxation of the second cervical spine and imbalance of TMJ. I do three diagnostic tests to confirm this.  If the second cervical spine is misaligned, he must have three factors, and if he wears an IBA, the three factors will disappear immediately. This is because when the three factors disappear, the second cervical spine returns to the normal position at the same time. This is because IBA turns off the negative signals of the nine cranial nerves from both jaws. Once these factors are confirmed, the name of the disease is not important to me. This is because most of the symptoms will disappear if the patient's general spine returns to normal. I believe most of the positive changes will further occur if the correlation between the subluxation of the axis and the imbalance of the temporomandibular joint is confirmed. Because my therapies can be the best guide for them.


2. Dr. Young-Joon Lee's Secondary Therapy (Dr. Lee's complementary therapies)

(1) Dr. Lee's upper cervical alignment Therapy
(2) Dr. Lee's acupuncture Therapy
(3) Dr. Lee's herbal medicine Therapy
(4) Dr Lee's cupping therapy
(5) Dr. Lee's craniosacral therapy
(6) Dr. Lee's pelvic balancing therapy
(7) Dr. Lee's spinal balancing therapy
(8) Dr. Lee's cervical Traction Therapy
(9) Dr. Lee's exercise Therapy
(10) Dr Lee's stretching therapy
(11) Dr. Lee's psychotherapy


Danielle Andela
31-01-2020

Hi Everyone, every day when Federico and me wake up we are amazed by all the sweet messages and the amount of support we are receiving from all of you. Our dear family members, friends, friends of friends, and even people we do not even know but are still trying to help us. We are deeply touched in our hearts. Can't believe we raised over 15,000 EUR already... 55% of our target. Thank you, thank you, thank you!!


Danielle Andela
29-01-2020

Hi Everyone, the last two days were really rough... Danielle has really got to get used to the intense treatment. She is having a lot of spasm attacks, sometimes continuously for hours (think "Exorcist"...), after which she just passes out. According to Doctor Lee, this is all part of the process. First, you get a lot wore before getting better. The body has got to get used to the realignment. 

 

A normal day at the clinic looks kind of like this:

09:00 Exercises/physiotherapy at the gym

10:30 Medical consultation with Doctor Lee (splint/jaw/neck realignment)

11:30 Accupuncture and cupping

12:00 Exercises/physiotherapy at the gym

13:30 Lunch

14:30 Medical consultation with Doctor Lee (splint/jaw/neck realignment)

15:00 Cupping

15:15 Exercises/physiotherapy at the gym

16:30 Medical consultation with Doctor Lee (splint/jaw/neck realignment)

17:00 Cupping

17:15 Exercises/physiotherapy at the gym

18:00 End

 

Then, you should go walking outside for one hour and running for at least twenty minutes... Danielle can walk three minutes now. You can have one, two or three consultation with Doctor Lee a day. The realignment of the jaw and neck is pretty intense. Doctor Lee suggested that for the rest of this week, Danielle only follows part of the daily program due to her spasm attacks. Danielle is doing her best to get stronger every day!

 


Danielle Andela
27-01-2020

 

Yesterday evening, Danielle had two 'healing crises' or spasm attacks again for 30-60 minutes. First some muscles on the right side of Danielle's neck wanted to say hello and then Danielle's right shoulder started to have a party by its own before going to bed.... It's scary and not fun at all, but it does mean that the treatment is starting to work and a lot of things are happening... Let's do this!

 

We can't believe we passed the 10,000 EUR! Thank you so much everybody. 

 


Danielle Andela
26-01-2020

Happy New Year South Korea! While the clinic is closed today, Danielle is busy with doing exercises, such as these ones. The first month of therapy, it is normal for patients to experience a 'healing crisis'. Patients are asked to be aware of various physical changes (myung-hyun reactions, deflections) that occur during the treatment process until their symptoms are completely cured. The human body responds to medical treatment through what is called the Law of Cure, as explained by Dr. Constantine Hering. For more information, see Doctor Lee's website here.

Danielle is also experiencing many ups and downs. One moment she is straight and the other she has a five minute spasm attack in which she cannot control her body at all... a good sign as it means something is happening!

And wow, we already reached 30% of our crowdfunding campaign goal (for three months of therapy) in just 24 hours! It's amazing! We are overwhelmed with all the support. Thank you!!

 

 


Danielle Andela
25-01-2020

25 January 2020: Crowdfunding campaign going live! Thanks for your support


Danielle Andela
25-01-2020

21 January 2020: first medical consultation with Doctor Lee. He says he can help Danielle!


 

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